Spina Bifida Support Group
Nov 11 in Spina Bifida
I'm a 22 yr. old living with SB. I do have to admit I didn't accept myself being a person with SB all through my teenage yrs because all my friends could walk right & not me. I'm slowly learning how to deal with the emotional side of having SB. ...
Jun 26 in Spina Bifida
Hey everyone I just joined this group in hopes of getting the word out that there is hope with children and adults with spina bifida. My son just turned two and is the most normal child you will ever meet. He runs and walks all by himself with no s...
Jul 28 in Spina Bifida
I have a question about SB. I recently met a man who is UNBELIEVABLY amazing. He has SB. His is lumbar. He is quite capable of walking. He did have bladder surgery, and he does have some colon issues. I am finding out everything I possibly can!...
Aug 11 in Spina Bifida
I was born with spina bifida and hydrocephalus. I would love to talk to other who have the same issues I have.
Jul 10 in Spina Bifida
Mother of son with Spina Bifida.... He did not make it.... Stillborn. He was my first and I am angry and hate the world.... I want to damage everything in site. It is not fair that I have to deal with this pain and nobody else.... or so my new self s...
Jul 3 in Drug, Abuse, Acne
Good Morning Amazing SupportGroups' Members! We ran into an issue with a member who felt we were calling them out by not allowing them to share their personal blog on the site. While this is clearly against the rules (you may reference our legal sta...
Oct 23 in Spina Bifida
I am a 53 year old woman diagnosed with Spina Bifida and tethered spinal cord. I have spinal cord damage from have the tethered cord for 50 years (when I was diagnosed). I have found very few resources for adults living with this disease and am inter...
Oct 18 in Medicare, Medicaid, Spina Bifida
been terrifing... his haert stopped for 19 mins the other day...they brought him back then called and asked me what i wanted them to do..I said "everything." when i got in there he looked awful. but in a few hours he improved prayer and medicine. s...